Produced in collaboration with the Asthma and Allergy Foundation of America
Support for this patient education program was provided by OptiNose US Inc.; Regeneron Pharmaceuticals, Inc.; and Sanofi Genzyme.
Join us for a new 1-hour-long educational program for patients to learn how to take a more proactive approach to the care of their nasal polyps, shorten the time to diagnosis, and work with clinician teams to optimize treatment. Patients will learn about the growing treatment options for nasal polyps, understand the place of surgery in the management of nasal polyps, and discover strategies to ensure they have access to appropriate, effective, and timely care.
This program will explore:
- Communicating with your doctor and other clinicians about symptoms that may be significant for the presence of nasal polyps to reduce time to diagnosis
- Identifying current and emerging strategies for managing nasal polyps
- Practicing shared decision-making with clinicians regarding care for nasal polyps to shorten time to diagnosis and optimize therapy
Specifically, it will look at topics such as: symptoms of nasal polyps, reducing time to diagnosis, enhancing access to treatment, surgical options, seeking care, and finding support.
Overall, this program will show how, by working together, patients and clinicians can set and achieve meaningful treatment goals.
Have any questions? Submit them to the Q-Board to have them considered for future programs.
John Bosso, MD
Clinical Professor, Division of Rhinology Department of Otorhinolaryngology: Head and Neck Surgery University of Pennsylvania, Perelman School of Medicine
John V. Bosso, MD, serves as medical director of the Aspirin Exacerbated Respiratory Disease (AERD or Samter’s triad) Center and director of the OTO-Allergy Clinic at Penn Medicine in Philadelphia. He is one of the country’s most experienced AERD super-specialists with over 30 years of expertise in managing this challenging condition. Dr Bosso was one of the first allergy/immunology fellows to learn the techniques of aspirin desensitization and has subsequently successfully desensitized over 1000 AERD patients. His current research focuses on potential causes, molecular mechanisms, and treatments of AERD. Dr Bosso has spoken at national otorhinolaryngology meetings and served on AERD panels. In addition, he is a proud supporter of the Samter’s Society, a support group for AERD sufferers.
Vice President, Corporate Affairs and Research, Asthma and Allergy Foundation of America
Sanaz Eftekhar, vice president of Corporate Affairs and Research at AAFA, leads tactical and strategic conversations with business partners and stakeholders across multiple industries. She has been instrumental in working with AAFA’s partners to present patient perspectives on the needs for atopic dermatitis treatments to the US Food and Drug Administration. In a greater effort to connect patients with vital clinical trials, Sanaz has been a key player in the development of AAFA’s upcoming clinical trial database. She has led AAFA’s involvement in the CIU & You campaign since its launch in 2015, co-authored several key AAFA research reports, and serves as secretary on the Board of Directors for the Global Allergy & Airways Patient Platform (GAAPP).
Nasal Polyps Patient
Danna Benson was diagnosed with nasal polyps in early 2018. She had been having chronic ear infections over the previous few years and had been treated by her primary care provider with antibiotics. While presenting symptoms of congestion and ear infections, Danna was referred to an ENT physician who ordered a hearing test with an audiologist. The hearing test came back normal, and she was then referred to get a CT scan of her sinuses, which showed bilateral nasal polyps. Danna was prescribed an oral prednisone burst and budesonide irrigations. With a better understanding of nasal polyps and recognition of the early signs of congestion and sinus pressure, she is now able to combat the symptoms with allergy medication and saline nasal flushes as needed.