Produced in collaboration with the Asthma and Allergy Foundation of America
Support for this patient education program was supported by educational grants from Regeneron Pharmaceuticals, Inc. and Sanofi Genzyme, and Takeda Pharmaceuticals U.S.A., Inc.
Patients experiencing the symptoms of eosinophilic esophagitis (EoE), or caregivers caring for infants or children who have symptoms of EoE, are often unaware of the characteristic signs that should lead them to seek medical care to confirm a diagnosis of EoE. Children usually present with heartburn, abdominal pain, nausea, vomiting, and even malnutrition, or may have a gastroesophageal reflux disease (GERD)-like condition. Adults often have chest pain, upper-abdominal pain, or solid-food dysphagia. Those affected often alter their diet to reduce likelihood of symptoms. If left undiagnosed or untreated, this type of inflammation can lead to tissue remodeling and narrow the esophagus, which can lead to medical emergencies that require endoscopic interventions.
Join us for an in-depth panel discussion between a gastroenterologist, a caregiver, and a representative from the Asthma and Allergy Foundation of America on the signs and symptoms of EoE in babies, children, and adults that should prompt testing for EoE. Once diagnosed, patients and caregivers should be aware of dietary and procedural treatments, as well as current and emerging drugs that can improve symptoms and prevent complications associated with EoE. This activity will help patients and caregivers take a more active role in treatment planning, discover resources for social and financial support, and find answers to their most pressing questions.
The panel discusses:
Long-term impact of untreated EoE
Evolving treatments in children vs adults
New topical corticosteroids – formulations, efficacy, and safety
Targeted treatments for EoE
Tips for daily coping with EoE
Strategies for managing EoE at school
Eating with EoE
Managing stress and anxiety
Don’t miss this opportunity to learn more about EoE. Register today to watch on-demand!
Speakers
Ikuo Hirano, MD
Sanaz Eftekhari
Donna Taylor
Ikuo Hirano, MD
Professor of Medicine
Division of Gastroenterology and Hepatology
Northwestern University Feinberg School of Medicine
Ikuo Hirano, MD, is a Professor of Medicine at Northwestern University Feinberg School of Medicine. Dr. Hirano took a faculty position at the West Roxbury VA Medical Center and Harvard Medical School working in esophageal swallowing physiology before coming to Northwestern. He is a site principal investigator for the National Institutes of Health (NIH) supported Consortium of Eosinophilic Gastrointestinal disease Researchers (CEGIR). Dr. Hirano has written over 200 scientific papers and textbook chapters on esophageal and swallowing disorders. For the past two decades, he has focused his clinical and academic interests on eosinophilic esophagitis/gastroenteritis, and he has authored several society guidelines on the management of these increasingly recognized disorders.
Sanaz Eftekhari
Vice President, Corporate Affairs and Research
Asthma and Allergy Foundation of America
Sanaz Eftekhar, vice president of Corporate Affairs and Research at AAFA, leads tactical and strategic conversations with business partners and stakeholders across multiple industries. She has been instrumental in working with AAFA’s partners to present patient perspectives on the needs for atopic dermatitis treatments to the US Food and Drug Administration. In a greater effort to connect patients with vital clinical trials, Sanaz has been a key player in the development of AAFA’s upcoming clinical trial database. She has led AAFA’s involvement in the CIU & You campaign since its launch in 2015, co-authored several key AAFA research reports, and serves as secretary on the Board of Directors for the Global Allergy & Airways Patient Platform (GAAPP).
Donna Taylor
Parent of child with EoE
Donna Taylor lives in Mesa, AZ with her husband and two medically-complex children. She a Bachelor's in Social Work, a Masters of Science in Acupuncture, and is Nationally Board Certified in Acupuncture. Donna has spent most of her time advocating for her children and others with EGIDS. Because her son has a particularly severe case of EoE, there is not much that they have not experienced in the EGIDS world. They have participated in research studies and opinion panels related to EoE families for over ten years. Donna is an administrator of multiple Eosinophilic-related groups online and has participated in local in-person groups as well. She enjoys meeting new people and guiding families into available support opportunities.
-
Ikuo Hirano, MD
Professor of Medicine
Ikuo Hirano, MD, is a Professor of Medicine at Northwestern University Feinberg School of Medicine. Dr. Hirano took a faculty position at the West Roxbury VA Medical Center and Harvard Medical School working in esophageal swallowing physiology before coming to Northwestern. He is a site principal investigator for the National Institutes of Health (NIH) supported Consortium of Eosinophilic Gastrointestinal disease Researchers (CEGIR). Dr. Hirano has written over 200 scientific papers and textbook chapters on esophageal and swallowing disorders. For the past two decades, he has focused his clinical and academic interests on eosinophilic esophagitis/gastroenteritis, and he has authored several society guidelines on the management of these increasingly recognized disorders.
Division of Gastroenterology and Hepatology
Northwestern University Feinberg School of Medicine -
Sanaz Eftekhari
Vice President, Corporate Affairs and Research
Sanaz Eftekhar, vice president of Corporate Affairs and Research at AAFA, leads tactical and strategic conversations with business partners and stakeholders across multiple industries. She has been instrumental in working with AAFA’s partners to present patient perspectives on the needs for atopic dermatitis treatments to the US Food and Drug Administration. In a greater effort to connect patients with vital clinical trials, Sanaz has been a key player in the development of AAFA’s upcoming clinical trial database. She has led AAFA’s involvement in the CIU & You campaign since its launch in 2015, co-authored several key AAFA research reports, and serves as secretary on the Board of Directors for the Global Allergy & Airways Patient Platform (GAAPP).
Asthma and Allergy Foundation of America -
Donna Taylor
Parent of child with EoE
Donna Taylor lives in Mesa, AZ with her husband and two medically-complex children. She a Bachelor's in Social Work, a Masters of Science in Acupuncture, and is Nationally Board Certified in Acupuncture. Donna has spent most of her time advocating for her children and others with EGIDS. Because her son has a particularly severe case of EoE, there is not much that they have not experienced in the EGIDS world. They have participated in research studies and opinion panels related to EoE families for over ten years. Donna is an administrator of multiple Eosinophilic-related groups online and has participated in local in-person groups as well. She enjoys meeting new people and guiding families into available support opportunities.
